Les brevets sur le vivant sur la sellette

LONDON – Au début du mois de février 2010, un tribunal d’instance du district de New York a été saisi d’une affaire décisive, mettant en délibération le “droit de tout individu à être informé” du rôle déterminant de son génome dans son état de santé. Ce procès oppose l’American Civil Liberties Union à la firme Myriad Genetics, et son issue pourrait avoir un impact retentissant sur la médecine et la science.

Les brevets génétiques facilitent-ils la recherche médicale ou l’entravent-ils? Faut-il que le coût des tests de dépistage soit alourdi par des royalties? Telles sont certaines des questions soulevées par cette affaire.

Lisbeth Ceriani, l’une des plaignantes, est une femme de 43 ans atteinte d’un cancer du sein, à qui les médecins ont prescrit le dépistage de deux mutations génétiques en cause dans certaines formes héréditaires de cette maladie. Myriad Genetics détient l’exclusivité de ce test aux Etats-Unis – les brevets dont cette firme est détentrice couvrent non seulement les tests diagnostiques, mais les gènes eux-mêmes – et a refusé l’assurance de la patiente, qui n’a pas pas été en mesure de payer le test. Lisbeth Ceriani et ses médecins ont donc été tenus dans l’ignorance des éventuelles ramifications concernant son suivi clinique. Cinq autres plaignants – ainsi que d’éminentes institutions médicales – font état des mêmes griefs.

To continue reading, please log in or enter your email address.

Registration is quick and easy and requires only your email address. If you already have an account with us, please log in. Or subscribe now for unlimited access.


Log in

  1. Television sets showing a news report on Xi Jinping's speech Anthony Wallace/Getty Images

    Empowering China’s New Miracle Workers

    China’s success in the next five years will depend largely on how well the government manages the tensions underlying its complex agenda. In particular, China’s leaders will need to balance a muscular Communist Party, setting standards and protecting the public interest, with an empowered market, driving the economy into the future.

  2. United States Supreme Court Hisham Ibrahim/Getty Images

    The Sovereignty that Really Matters

    The preference of some countries to isolate themselves within their borders is anachronistic and self-defeating, but it would be a serious mistake for others, fearing contagion, to respond by imposing strict isolation. Even in states that have succumbed to reductionist discourses, much of the population has not.

  3.  The price of Euro and US dollars Daniel Leal Olivas/Getty Images

    Resurrecting Creditor Adjustment

    When the Bretton Woods Agreement was hashed out in 1944, it was agreed that countries with current-account deficits should be able to limit temporarily purchases of goods from countries running surpluses. In the ensuing 73 years, the so-called "scarce-currency clause" has been largely forgotten; but it may be time to bring it back.

  4. Leaders of the Russian Revolution in Red Square Keystone France/Getty Images

    Trump’s Republican Collaborators

    Republican leaders have a choice: they can either continue to collaborate with President Donald Trump, thereby courting disaster, or they can renounce him, finally putting their country’s democracy ahead of loyalty to their party tribe. They are hardly the first politicians to face such a decision.

  5. Angela Merkel, Theresa May and Emmanuel Macron John Thys/Getty Images

    How Money Could Unblock the Brexit Talks

    With talks on the UK's withdrawal from the EU stalled, negotiators should shift to the temporary “transition” Prime Minister Theresa May officially requested last month. Above all, the negotiators should focus immediately on the British budget contributions that will be required to make an orderly transition possible.

  6. Ksenia Sobchak Mladlen Antonov/Getty Images

    Is Vladimir Putin Losing His Grip?

    In recent decades, as President Vladimir Putin has entrenched his authority, Russia has seemed to be moving backward socially and economically. But while the Kremlin knows that it must reverse this trajectory, genuine reform would be incompatible with the kleptocratic character of Putin’s regime.

  7. Right-wing parties hold conference Thomas Lohnes/Getty Images

    Rage Against the Elites

    • With the advantage of hindsight, four recent books bring to bear diverse perspectives on the West’s current populist moment. 
    • Taken together, they help us to understand what that moment is and how it arrived, while reminding us that history is contingent, not inevitable

    Global Bookmark

    Distinguished thinkers review the world’s most important new books on politics, economics, and international affairs.

  8. Treasury Secretary Steven Mnuchin Bill Clark/Getty Images

    Don’t Bank on Bankruptcy for Banks

    As a part of their efforts to roll back the 2010 Dodd-Frank Act, congressional Republicans have approved a measure that would have courts, rather than regulators, oversee megabank bankruptcies. It is now up to the Trump administration to decide if it wants to set the stage for a repeat of the Lehman Brothers collapse in 2008.