Genetik fürs Volk?

LONDON – „Sie sollten die Kontrolle über Ihre genetischen Informationen haben“, heißt es in der Werbung der amerikanischen Gentest-Firma 23andMe, die Selbsttests direkt für den Kunden anbietet. Mitten in der Aufregung über elektronische Abhörpraktiken ist die Vorstellung, dass jeder Einzelne darüber entscheiden sollte, wer auf seine persönlichen Daten zugreifen kann, besonders verlockend. Doch ob 23andMe auch das praktiziert, was es predigt, bleibt bestenfalls fraglich.

Tatsächlich haben selbst einige „Technik-Libertins“, die der Meinung sind, der Staat sollte neue Entwicklungen in der Biotechnologie nicht regulieren, die Entscheidung der US Food and Drug Administration (FDA) unterstützt – die wurde letzten November in einem bitterbösen Brief an die 23andMe-Geschäftsführerin Anne Wojcicki dargelegt und untersagt es der Firma, ihre Tests zu vermarkten, bevor keine weitere wissenschaftliche Analyse stattgefunden hat. „Ich würde gerne behaupten können, dass sich die [FDA] mutwillig dem Unternehmertum und der Innovation entgegenstellt, indem sie bei 23andMe hart durchgreift“, schrieb Matthew Herper in Forbes. „Ich würde mir wünschen, dass das die Geschichte wäre, über die ich berichten würde, aber so ist es nicht.“

Laut FDA verstößt das Marketing für einen nicht zugelassenen Persönlichen Genom-Service (PGS) gegen US-Gesetz, da 23andMe nach sechs Jahren immer noch nicht bewiesen hatte, dass diese Tests tatsächlich funktionieren.

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